Heart. You gotta have it! And we are leaving Boston with Kaden’s heart in better condition than when we arrived, and probably ours too ❤️ We came with the intentions to dilate the mitral valve in the cath lab, and instead the surgeons at Boston Children’s were able to repair his valve & left ventricle in his first open heart surgery.
Prior to discharge, Kaden needed to get a sedated echo. Our goals were to have the pressures through his mitral valve be half of where they were when we started & the pressure on the right side of his heart to be low too. To be specific, Cardiologists gauge pressure through numbers on a scale of mild, moderate, severe, and critical. The gradient across Kaden’s mitral valve has been 12-14 (moderate to severe) since he was born. Dr. T wanted to see these numbers drop to 5-7 (mild to moderate) after surgery.
Results… Currently, the gradient across the mitral valve is 3-4 … MILD!!!!!!!!!! Wooooooooo!!! The echo proved the pressures in the right side of the heart were also low!! Exactly where we had hoped! AND the echo showed NO STENOSIS in his aortic valve. This is where his disease originated, and it has miraculously been healed!!!!!!! This doesn’t mean it may not come back, the nature of the disease is stenotic (sticky) tissue. However, for now we will celebrate this victory and Praise God for orchestrating Kaden’s healing. It’s a true miracle.
Kaden has recovered very quickly, and just two weeks following his surgery, we are headed home. Thank you again for following our story, and more importantly praying for our son. His story is a testament to the power of prayer and we must give all the glory to our Maker, the Almighty Healer.
Although this has been the most difficult thing we have faced as a family, Lord I know we are the clay and you are the potter. “We now have this light shining in our hearts, but we ourselves are like fragile clay jars containing this great treasure. This makes it clear that our great power is from God, not from ourselves”. 2 Corinthians 4:7.